8.23.2009

7 Whys

1. Why do we have to have gray hair? I have had grays since I was 18 years old. Why? I color it & I look younger & life is great!. The birds seem to chirp a little louder, the air smells crisp & the screaming, BRAT down the road doesn't seem to annoy me so much. Then 2 weeks or so passes & as I brush the night nast out of my mouth I see a damn gray hair. I look close & freakin A, they are all around my hair line. That's where they start showing their little smart asses, around my face. It's a Vicious cycle, why do we have to go gray?
2. Why do women put on make up while they are driving? Oh, never mind that's me I'm talking about. My bad, never mind. No seriously I can see why that could be a why! SMILE!
3. Speaking of driving..... why do some people get right up on your butt like they are trying to sit in the front seat with you & then you have those people that are so far away from the car in front of them that you could put 2 cars in between?
4. Have you ever wondered why diet has the word die in it? Cause your ass is gonna die trying to live off carrots, yogurt & water. HA HA I thought that was kind of funny.
5. Why does warm bread with whipped butter taste soooooooooooooo good?
6. Why do some kids have to be so cruel in school. Bully's stink.
7. Whatever I decide to cook for dinner I am always missing 1 ingredient, why????

8.21.2009

Does the WWF take children?

I woke up this morning to a small foot kicking me in the ribs. Why is Kaden so ruff? I mean one minute he was Sweet Baby Kaden & the next Thanh was signing him up with the WWF.
Here is what I'm thinking the deal is. I mean I know he 2 and a 1/2. We all know about the terrible 2's, but seriously. He is ruff & talks back. Yesterday I tried to put him in timeout because he would not come inside. He told me No. And then I was like yes, sir you need a time out. And then he crossed his little arms & said but I'm too angry to go to time out. It was kind of funny, because he was so serious. The thing that upsets me the most is his hitting. What the Heck, I don't like it a bit. My other two kids never did this.
So when ever there is a problem I always assess the situation. And I always have to fix it. So assessing our situation I feel there is influence involved.
One influence is Mahala. She is so ruff & loud. Not to mention Moody! The joke around here is that we wish her period would go ahead & start. I know that's an awful thought about your daughter, but it's true. She's the middle child. And I know it's hard for her to be in the middle of Skylar, who is almost the perfect child & Kaden who is the baby. Back to Kaden though, Mahala needs a post all to herself.
My second influence is that Kaden sees Skylar & Mahala fighting way too much. They are 9 & 15, sometimes they are close & other times they are worlds apart.
And the last influence is tv. During the summer I allow the kids to watch tv freely. Freely means during the day when we don't have something to do. Even though the shows are PG, some of them may not be appropriate for Kaden to catch an eye full here & there. Sometimes I wonder about Nickelodeon & the Disney channel.
Thankfully school is starting, because then I will not have to worry about this one. During the school year the kids do not get tv Mon- Thurs. And only for a Family movie night on Fri. And Sat. & Sun. is only after all the chores are done & after any running around we have to do. They usually end up with about 4 hours of tv a week, including the Family movie. This has been our tv schedule for the past 8 years. And has worked, but I may need to be more guarded for Kaden's sake.
Maybe the move is contributing too. His behavior really changed this Summer. And this Summer we have been packing & slowly moving. And now we are slowly unpacking.
I know it's all normal & I just need to tweak a few things. As parents we all want the best for our little ones. And having bad behavior is something you don't want your little one to have.
Hopefully I wont go completely crazy!!!! But, with some structure back in the house & some discipline I think we might just make it. I am Manic Mom after all.....I'm already crazy!

8.15.2009

I call it Home

I'm here, I'm here!!!!!!!!
I hope you all haven't forgotten who I am.
Life has been so crazy around my house. Or should I say houses.
We started moving boxes into the new house the last week in July. And last Saturday we moved all the furniture over. Saturday was our first night here. I can't believe it's been a week already.
We love this little house. Yes, there are major changes. But, I think with some crafty organizing and patience we should be able to live here comfortably.
We still have a lot to move yet. So, once or twice a day the kids and I go and load up the van. And then we unpack it and find a new place to smush it. That was Mahala's exact words.
The other day we were going to the New house with boxes and Kaden was so excited and giggling about going to the New house to play trucks. Mahala then asked me when do we stop calling the New house the New house. I don't know, that's a great question. I told her that she can call it the New house until she felt like it was truly Home. It's getting there, I told her. I said a house is just a house until you put all your loved ones in it. Then it's called your HOME!

8.04.2009

Tonight's My Lucky Night!!!!

This week has slowly been better for me. Today has been nice, quiet and nice. Tonight I am dreading the methetrexate, because the cycle will begin all over again. But tonight I feel strong. I usually take my treatment on Tuesdays, but weeks like last week I waited until Wednesday. It's a tough call. I try and do it on a day I feel strong, well and rested. So, tonight is the lucky night.
Thank you so much for all the wonderful emails and comments!!!!! Strength in numbers, right? That's what my Mom always said.

So many of you have asked about my Lupus and what it is. I am working on a Beautiful new blog right now with a great friend of mine. That way I can offer more permanent Lupus information. :-) Stay tuned!

We are still packing, I swear, will it ever end....honestly will it????????
I can't wait to see none of this and more of this!
Even Kaden has had enough. We found him asleep on his Easter bunny today in his new room. Sweet Dreams!


8.01.2009

Lupus Cries But I Don't Follow

It's Saturday night and I am sitting here in tears. I have swollen legs and arms, a fever, bleeding gums, a headache and an upset stomach with diarrhea. No I do not have some crazy virus it's my Lupus. It's bad my friends and the crazy thing is that I keep on going. I try to hide it the best that I can. I don't want to stop living just yet. I don't want to surrender my body to something that has already stolen so much.
I just came back from dinner with friends and I guarantee no one had a clue. It was my little secret. I felt like my body was crumbling as I asked for another glass of tea. I had the shakes, so I blamed the air conditioner. I went to the bathroom 4 times, I blamed the tea. The sauce burned my open sores in my mouth, I blamed my braces. On and on the list goes. Day in, day out the excuses slip from my lips. The little Lupus lies I tell in order to enjoy my life. I always joke around with Thanh that one day I will drop dead and everyone will go what happened? What was wrong.....it was so sudden.
Tonight was pushing the envelope I think. I wonder how long I can do this. I feel a depressing mood sweep across me tonight. What better way to spend it then with my blog friends. The friends that know me best. You know all my dark secrets, yet still choose to come back. Why do you come back? :-)
Tonight the pain is very hard to deal with. You may wonder how many pain pills I will swallow to get some shut eye tonight. Actually, tonight when I lay on my bed I will do what I do every night. I am going to embrace all the pain I have. It's like I will almost introduce myself to it. I will mentally say something like Hello left leg. I know you are swollen and in pain. It feels like you are on fire with knives sticking in you. I embrace you with a warm hug. I know you will not be here when I wake in the morning. You will be gone and I will be able to walk in the morning, Thank you Lord. Then I will talk to my other leg and then my stomach and ever other part of me. I say over and over that tomorrow will be a better day. I know this sounds crazy and if you choose to never come back I will understand. :-) This is just what works for me. This is what gets me through the pain. This is what keeps me from crying and screaming when I fear I may not wake up because the pain is too much to bare. There are times when this will not work. One of the times is when I have pleurisy. Several times a year my body develops fluid around my heart & lungs. The pain is worse at this time then almost any other. During these times I have to be sedated, not even my prayers and imagery can get me through alone.
Praise God, tonight is not one of those nights. So, I will pull myself up by the boot straps and get through another night. Hmmmmmmmmmm, I think I will talk to my tummy first.
Hugs to ya'll out there!

7.29.2009

Chemo Night

Today we not only picked up our keys for the new house, but we moved in some boxes and unpacked them. Thirty-five boxes to be exact. My kids are so awesome. They are the ones that wanted to start unpacking. And tonight was also my chemo night! Yeah me, right. I can almost feel the poison drip down my throat and move through my veins. I try to visualize the good that it is doing my body. Remember happy thoughts bring about positive results.
I am so tired and nauseous right now I can barely post this. I just had to give an update about the progressive move to smaller, yet better things in my life.
Cheers!

7.26.2009

A change in the air

The boys are back and life has been a bluuuuuuuuuuuuuurrrr the past few days. Thanh and Skylar left Friday for a 48 hour LAN party. Just Mahala, Kaden and I stuck here at home. We shopped, watched movies, ate junk food, went to the park and just hung out. Lots of fun I must say, but I am wiped out. Thanh treated us all to Vietnamese take out tonight. Nothing like take out and Tv for the whole family! :-) Hopefully we will make it to bed sooner then later and get rested for the week. Monday Mahala goes to the Neurologist and it's our last week before we get the keys to the new house. Lots to do this week.
I'm real exhausted right now, but my mind is racing with ideas. I am at a point in my life where I feel things are taking a turn. Have you ever felt a change a comin'? I know it's crazy, but I feel the world shifting all around me and nobody else can feel it. Which is all the same, because me and my control issue likes to carry all the worry. But, I think this change may be a good thing.
I'm going to go and relax a little. Night-night!

7.15.2009

Lost hair

If you find any hair please send some to me!! Weird request, I know. Everyday my hair gets thinner and thinner. And for some reason it has become brittle. Ok, I know it's from the chemo treatments, but can I get a break. And I don't mean in hair. HA HA
I feel vain talking about my hair, but oh well. My blog, my hair. I look at my daughter's thick hair and think I remember those days. Days of waking up and knowing that your hair is healthy and on your head. Days where getting a haircut wasn't calculated by the thickness of either side of your head. Please Lord don't let me look like Donald Trump! I used to have soft, dark hair. I still have dark hair where the color will take, but it feels like 30 year old Barbie hair on a bad day. Imagine that for just a minute. HA HA
Mahala complains about her hair too. It's to hot, I can't get the shampoo out or I don't want to brush it. Tough shit I tell her. Be thankful you don't have this. And then I make a goofy face while running my fingers through what I do have. She laughs most of the time. Sometimes she just rolls her eyes and rattles off "whatever Mom".
I tell her honey if your hot put it up, add some conditioner with your shampoo and if you don't want to brush it then walk around like a little animal. It's all good!!!!!

7.13.2009

Stuff can't make You happy, so get rid of it!

We are still packing. August is looming in the distance. It's close but still so far away. I'm excited about our move and the cute new house. But, I'm at the point where I just don't want to pack anymore. It has happened folks, I've reached my limit. I'm hot, tired, hungry, bored and did I say tired? And to think that after this move we will have at least 2 other moves....maybe just one more if the moving gods are speaking to me or not.
The classroom/craft room is finished. Along with my closet, Kaden's room, Mahala's room and my office. Now I'm at a wall, it's like a page In a book that you keep reading the first sentence over and over again. I hate when I do that!
I need to focus and recommit myself. I need motivation here people, let's send out the Bat Signal quick!
The interesting thing about moving into a smaller house is the fear of putting all your crap in it. I mean all those shopping trips that you took and bought all the stuff you call possessions. You are right they are all just possessions, things you own. Or do they really own you. Think about that trip to Target and you knew you would just die if you didn't have that leather upholstered mirror hanging up in your game room. Or that white T shirt with the small front pocket. Of course you had to have one of those and why not in red, yellow and blue too. I will admit that I am a clothes whore. I love all clothes, even clothes that don't fit me. I just look at those, It would be silly to buy stuff that doesn't fit. Even I have my limits.
As I pack I'm putting together donate and yard sale boxes. I'm getting rid of everything that doesn't bring me joy and happiness. If I don't smile and look good in it I'm getting rid of it. If it doesn't serve a purpose to my family, in the box you go. That part does feel good, but It's draining as well. Maybe that's why the wall is up. Maybe it is hard to let go when the mind listens to the heart that truly believes you need that one thing to be Happy. But, I am happy......even without all that stuff.

7.12.2009

Long 3 Weeks

I went to the Doctor the other day. I was thrilled because my blood pressure is beautiful and weight is steady. YEAH!!!!! We are adding a new med and ditching one of the ones I have been on forever. This pill gave me so many side effects, but no relief for my blood pressure. Crazy! So, I asked her if I could take a pee test because I thought I might have a bladder infection. She laughed and said that if I had an infection I would know. I wanted to be sure so she went ahead and tested me. Sure enough I have a bladder infection. Lucky me.....I was right.
So, I went to get my lovely antibiotic and looked behind the local stores for boxes. The kids get so embarrassed that I search for boxes. I tell them that were moving! What am I supposed to pack our treasures in, hefty sacks! I can't afford to buy boxes. Just to give you an idea as to how much crap we are dealing with. I packed 16 boxes just in crafts and scrap booking stuff. It's crazy I know. And to think that we got rid of stuff that we didn't want or couldn't use anymore. This is going to be a long 3 weeks.

7.01.2009

Emergency Room, here we come......Again

 Mahala came up to me at the gym and told me her stomach hurt, that she didn't feel well. I offered her some water and she seemed nervous and said that she REALLY didn't feel well. She told me she thought she might throw up. So, I went with her to the bathroom and she leaned on the sink. I tried asking her a few questions, like did she fall, hit her head or.....
She couldn't answer me. I caught a glimpse of her face in the mirror and tilted her head towards me. Her face and neck was white and chalky looking. Around her mouth and eyes it was a deep blue color. She also had beads of sweat on her forehead and chest, even on her arms and back. A lady walked in and I told her I needed help for my daughter. At that time Mahala collapsed over the sink. She was so cold, I had never felt anyone alive that was cold like that. I was terrified to say the least.
The front desk people called the ambulance and there was actually a mother there that was an EMT. What a blessing to have had so many helpful people with us, because I was hardly any help. She was out of it for probably 5-6 minutes before she was able to answer questions. You know how they say time stood still or that 5 minutes was a lifetime. I agree totally, it was like there was an ocean between us and all I had was a spoon to paddle towards her.
When they picked her up to put her in the ambulance there was a sweat outline of her body on the floor. That's how bad she was sweating. The ride to the hospital was not as long as I thought. The guys were wonderful and made both of us feel at ease. Poor Thanh was at home when I first called all frantic. He was rushing to the gym when I had to call back and redirect him to the hospital from the ambulance.
She looked almost normal and not so cold when we were all settled in at the hospital. After several test the Dr. said she was fine enough to go home. But he did say on Monday we needed to go to our regular Doctor. Still confused and worried about what had happened just 8 hours ago we went home. Mahala was exhausted and wanted to sleep. I didn't leave her sight for more then 2 minutes. We were all a little nervous.
The next day she didn't want to go swimming with friends, because she was worried that it might happen again. So, we stayed home and hung out. Friends decided to come over, so that was nice. Sunday night I did try & revisit the situation. I wanted to make sure I had all the facts correct before we saw our Dr. the next morning. She remembered coming to me before the bathroom and some of the ambulance ride. Between that she knows nothing.
Monday morning bright and early we meet with her Doctor.
So, he doesn't even touch her, not even a temperature was taken. And he gives her a diagnosis, vasovagal syncope. Later when we got home I of course looked it up. I don't think everything matches up, but what do you do, he's the one making big bucks, right?
He told me that if it happened again that we would need to do further testing. That we did have heart issues in our family and this could mean something more serious. I had a choice, I could do it now or wait. I decided to go ahead and see the Neurologist. Mahala was worried and I felt it was better to be safe then sorry. So, next week is our appointment.
The Doctor said she could go Monday night to gymnastics. Mahala was a little apprehensive, but decided to go. I watched her every move and thankfully she was as beautiful as ever out there. She has more confidence after going that night and now she is buzzing around here like nothing has happened. And even though it is in the back of my mind I'm letting everything run as it always has. The last thing I need is for her to be a nervous wreck.
More Later